Elegy for A Disease

Elegy for A Disease

A Personal and Cultural History of Polio

Book - 2006
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During the first half of the twentieth century, epidemics of polio caused fear and panic, killing some who contracted the disease, leaving others with varying degrees of paralysis. The defeat of polio became a symbol of modern technology's ability to reduce human suffering. But while the story of polio may have seemed to end on April 12, 1956, when the Salk vaccine was declared a success, millions of people worldwide are polio survivors.
In this dazzling memoir, Anne Finger interweaves her personal experience with polio with a social and cultural history of the disease. Anne contracted polio as a very young child, just a few months before the Salk vaccine became widely available. After six months of hospitalization, she returned to her family's home in upstate New York, using braces and crutches. In her memoir, she writes about the physical expansiveness of her childhood, about medical attempts to "fix" her body, about family violence, job discrimination, and a life rich with political activism, writing, and motherhood.
She also writes an autobiography of the disease, describing how it came to widespread public attention during a 1916 epidemic in New York in which immigrants, especially Italian immigrants, were scapegoated as being the vectors of the disease. She relates the key roles that Franklin Roosevelt played in constructing polio as a disease that could be overcome with hard work, as well as his ties to the nascent March of Dimes, the prototype of the modern charity. Along the way, we meet the formidable Sister Kenny, the Australian nurse who claimed to have found a revolutionary treatment for polio and who was one of the most admired women in America at mid-century; a group of polio survivors who formed the League of the Physically Handicapped to agitate for an end to disability discrimination in Depression-era relief projects; and the founders of the early disability-rights movement, many of them polio survivors who, having been raised to overcome obstacles and triumph over their disabilities, confronted a world filled with barriers and impediments that no amount of hard work could overcome.
Anne Finger writes with the candor and the skill of a novelist, and shows not only how polio shaped her life, but how it shaped American cultural experience as well.
Publisher: New York : St. Martin's Press, 2006.
ISBN: 9780312347574
031234757X
Characteristics: viii, 289 p. ;,24 cm.

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Liber_vermis
Dec 27, 2017

This autobiography will resonate with any reader who grew up in the late '50s and '60s. The author's life was affected not only by polio but also the mental trauma of a manic depressive, abusive father and an enabling mother. The author reveals the debilitating long-term mental and physical effects of polio. This autobiography would have been more personal if it had included some photos. The text has endnotes but many sources noted in the text are omitted from the endnotes. This book lacks an index and bibliography - both of which would have been helpful to readers. The author glosses over the immediate onset of polio as she didn't remember these details from age three so for a more complete life story of a polio I recommend "Black Bird Fly Away" by the late Hugh Gallagher.

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Liber_vermis
Dec 27, 2017

"... A 1990 survey of polio survivors revealed that a quarter of them had been diagnosed with clinical depression. ... nearly all people who had polio experienced traumatic separations from their families, along with the wounds - both physical and emotional - of subsequent surgeries, and the ongoing injury of finding themselves in severely constrained social roles. In addition the pressure ... to minimize the extent of their disability, to be cheerful overcomers, to fit themselves into the normal world, often resulted in a bifurcated self. Along with the self who was competent ... another, more shadowed self lived - sensitive to criticism, fearful of being unable to live up to ... expectations, and above all, lonely, for this was the part of ourselves we were supposed to keep well hidden." (p. 252)

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